She never went to bed without reading her scriptures- and would have intense guilt if she did.
She liked to organize the refrigerator & pantry.
Whenever anyone was sick she would clean the door knobs & wipe down the light switches.
She also hid Lysol spray & disinfectant wipes under her bed.
She counted things- everything.
She memorized license plates- knows to this day every plate in the neighborhood.
it goes on & on
We learned more & more- like when she was quite- or not engaged in conversations, she was counting.
She could not keep up with it all.
She went in & out of the hospital unit.
The doctors, nurses, social workers, psych techs, therapists, they were so good!
So very very good to us!
Still- I felt judged- like it was all my fault. I had failed. FAiled completely.
I wanted to scream out everyday as I entered the unit- I AM NOT A BAD PERSON!
I AM NOT A BAD MOTHER! But frankly I didn't know if that was true.
Worst of all I got phone calls- 2 terrible phone calls.
One from a well meaning family member-
one from a stranger who refused to tell me how she knew about our family-
offering cures.
Special medications, drinks etc. that the happened to sell.
Things that would stop inflammation (their so called cause of depression- which may be true? How would I know?) One person even had a cure for me that had- "cured people with Down's Syndrome." Of course these cures come at hefty prices & we were spending all our money in the "wrong place."
I was told by both people- if I was a good mother I would try it.
A good mother would try anything, right?
WEll- she was on a lot of meds- I wasn't about to risk crossing the drugs she was already on with something not even approved by the FDA. It was too risky for me - I refused them.
they both got angry- really angry
It made me angry-
I felt like they were trying to take advantage of our sad situation.
I felt & still feel sorry for the desperate people who fall for this crap.
It's been a year now & the family member (my sister) still won't speak to me.
It hurt & it still hurts.
I still think about it almost every single day.
Then- I try to remember the kind people who consistently help & offer encouragement.
REally-
WhY-- WHY is it we (I) let those few negative experiences take over all the good?
There are so many levels to this story.